Mesothelioma is a cancerous disease caused by asbestos exposure. A mesothelioma diagnosis is potentially uncharted waters, and filled with fear, uncertainty, and an avalanche of tough choices. For the majority of patients and their families, membership in a support group can make the emotional burden lighter and offer valuable expertise along the way. Let’s delve deeper into these support groups and how exactly they can help mesothelioma patients cope:
Why Do Mesothelioma Patients Need Support Groups?
Mesothelioma affected fewer than 3,000 new patients in 2021 in the US. Due to its infrequency, patients sometimes have a hard time finding others who can relate to what they are experiencing. That’s where mesothelioma support groups step in, offering emotional connection, resources, and real advice from those who understand.
Studies reveal that there is a high prevalence of fatigue in cancer patients who face significant emotional distress, followed by psychological distress, upon diagnosis of advanced, unresectable cancer. Support groups provide a voice to speak out, to voice fears, and to get care. Patients receiving ongoing support generally feel more empowered and less alone while on treatment. Many cancer centers and communities offer a haven for patients, caretakers, and their loved ones to discuss their feelings about the diagnosis and bring comfort.
Hospital-Based Resources as a Starting Point
Specialized cancer hospitals have strong patient support. These institutions extend beyond care by linking patients with trained therapists, counseling services, and peer groups dedicated to mesothelioma-specific support. These centers are unique because they offer:
- Access to specialist mesothelioma professionals and high-tech treatments.
- Individualized advice on clinical trials and care plans.
- Robust referral networks for in-person and virtual support groups.
The Pros and Cons of Internet-Based Mesothelioma Support Groups
Online support groups have become valuable for many mesothelioma patients, especially those who can’t attend in-person meetings due to health or location constraints. Some advantages include:
- Online support groups provide patients and caregivers a venue to communicate with one another, pose questions, and exchange emotional support online.
- One of the most significant benefits of online support groups is accessibility and flexibility. Patients can interact with others at any hour of the day from the comfort of their homes, making these groups particularly useful for patients going through therapy or those far from a comprehensive cancer center.
- The anonymity of being online also enables users to share their experiences and feelings without worrying about being judged. This is especially useful for new diagnoses or patients who struggle to communicate in typical group meetings.
These groups also have potential disadvantages, including:
- There is potential for miscommunication, as participants can misread tone and emotions in text-based exchanges.
- Not all information shared in these groups is accurate. Patients must be cautious and verify medical advice with licensed healthcare professionals to avoid misinformation.
- There is an absence of the emotional depth automatically built through face-to-face interaction.
- Interactions tend to feel less personal and meaningful without non-verbal cues such as facial expressions and body language.
Endnote
Support groups, both in-person and online, have a vital role to play in assisting mesothelioma patients and their families through the emotional and psychological turmoil of a challenging diagnosis. They provide needed connection, comfort, and insight at a time when fear and uncertainty can become overwhelming. Read the points above to expand your understanding of support groups, and do not hesitate to consult them if you or a loved one is suffering.
